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Alzheimer Strategy
In this section: IntroEvaluation Reports

On September 10, 1999, the government of Ontario announced Ontario's Strategy for Alzheimer Disease and Related Dementias. The first comprehensive Alzheimer Strategy in Canada, the government committed to investing $68.4 million over five years (1999 - 2004). The Strategy outlines the following 10 specific, but related initiatives to improve the quality of life for Ontarians affected by Alzheimer's disease and related dementias. The Final Evaluation Report 2005 and evaluation reports for each initiative are available for downloading from the Evaluation Reports page.

Initiatives:

 Staff Education and Training
 Physician Training
 Increase in Public Awareness, Information and Education
 Planning for Appropriate, Safe and Secure Environments
 Respite Services for Caregivers
 Research on Caregiver Needs
 Advance Directives on Care Choices
 Psychogeriatric Consulting Resources
 Coordinated Specialized Diagnosis and Support
 Intergenerational Volunteer Initiative

For a snapshot of where each initiative stands, please see the implementation milestones and status (PDF) document.

Initiative 1 - Staff Education and Training

This initiative is directed towards the provision of annual training programs for staff working in long-term care (LTC) facilities, Community Care Access Centres and long-term care community services across the province who provide service or support to persons living with Alzheimer's disease or related dementias. To date, a number of projects have been identified and supported, including the Putting the P.I.E.C.E.S. Together learning initiative staff participation in the college-based Dementia Studies Certificate Program and equivalent programs, LTC facilities staff participation in the Alzheimer Society of Canada's Enhancing Care through the Guidelines for Care program, and the U-First! education initiative for personal support worker-level staff and their supervisors.

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Initiative 2 - Physician Training

This initiative is directed towards the need for primary care physicians to receive training both in medical school curriculum and on an ongoing basis, to assist them in the early detection, diagnosis and management of Alzheimer's disease and related dementias, the implications for the family and on how best to use local community services.

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Initiative 3 - Increase in Public Awareness, Information and Education

This initiative is directed towards the need for increased public awareness of, and information and education on, Alzheimer's disease and related dementias. Forty public education coordinators have been hired and work as part of the local Alzheimer Society chapters to raise awareness and educate the public, healthcare providers and informal caregivers about Alzheimer's disease and related dementias. The funding for this initiative has been added to the Ministry of Health and Long-Term Care's annual base budget. For more information, please visit the Alzheimer Knowledge Exchange website.

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Initiative 4 - Planning for Appropriate, Safe and Secure Environments

This initiative is directed towards the need for optimal design of long-term care facilities for residents with Alzheimer's disease and related dementias. There have been four annual conferences financed and co-hosted by government with the Alzheimer Society of Ontario and the Murray Alzheimer Research and Education Project to explore the creative and functional design of living space for people with Alzheimer's disease and related dementias. There are plans under way to compile the information from these conferences and create Best Practice guidelines for use by community and institutional settings providing care to people with Alzheimer's disease and related dementias.

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Initiative 5 - Respite Services for Caregivers

This initiative is directed towards the need for the expansion of Alzheimer volunteer respite programs and new Alzheimer day program spaces. Site locations for this initiative were determined using a population needs-based methodology and an evaluation questionnaire has been distributed to Adult Day Programs that received funding through this initiative and results are being tabulated.

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Initiative 6 - Research on Caregiver Needs

This initiative is directed towards the need to ascertain, document and understand the key services that caregivers need.  The Alzheimer Society of Ontario, the Murray Alzheimer Research and Education Program (MAREP) and the Caregiver's Association of Ontario undertook this joint research project. Research includes a literature review and applied research. A highlights report of the preliminary findings can be accessed on the MAREP website.

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Initiative 7 - Advance Directives on Care Choices

This initiative was created to help seniors and persons with Alzheimer's disease and related dementias in Ontario become more aware of the benefits of Advance Care Planning (ACP) and to assist providers in respecting the choices people make in the ACP process. In addition to training many health care providers and long-term care facility administrators, resource teams have also delivered education locally to public groups. A guide to Advance Care Planning is available through the Ontario Seniors’ Secretariat, at local Alzheimer Society chapters or from the Ontario Senior's Infoline at 416-314-7511 or 1-888-910-1999.

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Initiative 8 - Psychogeriatric Consulting Resources

This initiative is directed towards further education and advice for staff in long-term care facilities and community service agencies. Psychogeriatric resource consultants advise on how to work with people who exhibit challenging behaviours attributed to Alzheimer's disease or related dementias. A Ministry of Health and Long-Term Care Regional Work Group meets bi-monthly to oversee the work of this initiative. The funding for this initiative has been added to the Ministry of Health and Long-Term Care's annual base budget. For more information, please visit the Alzheimer Knowledge Exchange website.

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Initiative 9 - Coordinated Specialized Diagnosis and Support

9A. Dementia Networks This initiative is directed towards the coordination and promotion of services for persons, families and caregivers living with dementia through the creation of new networks or the maintenance of existing dementia networks. These networks do not provide direct services but provide knowledge transfer and enhance partnerships between sectors. For more information, please visit the Alzheimer Knowledge Exchange website.

9B. Research Coalition This initiative is directed towards bringing together researchers with diverse academic/methodological backgrounds with representation from all regions. The Research Coalition will plan, coordinate and monitor collaborative multidisciplinary Alzheimer research projects.

A steering committee has been formed to guide the establishment of the Dementia Research Coalition and has developed a strategic direction document, The Path Forward: A Strategic Direction for The Ontario Research Coalition on Alzheimer Disease and Related Dementias 2002 - 2004 (PDF).

9C. Specialized Geriatric Services A two-day consultation was held to define the scope and mandate of specialized geriatric services to make their expertise more readily available to people with Alzheimer's disease and their families. The report is being considered by government.

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Initiative 10 - Intergenerational Volunteer Initiative

This initiative was directed towards the recruitment, training and support of students in grades 11 and 12 who volunteer with individuals with Alzheimer's disease and related dementia at long-term care centers and community agencies. This program is continuing at more than half of the original sites through Trillium funding.

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